Let's save Lorenzo!
Let's save Lorenzo!
Julia Clare organising this fundraising appeal on behalf of him
💔🙏 “Lorenzo is fighting Duchenne Muscular Dystrophy — and time is his greatest enemy”
Lorenzo is only 10 years old. Three years ago, he received a diagnosis that changed his life — and his family’s life — forever: Duchenne Muscular Dystrophy (DMD), a rare, progressive, and incurable genetic condition.
The disease is caused by the absence of a protein essential for muscles — dystrophin. Without it, the muscles continuously degenerate, affecting the entire body, including the heart.
There is still no treatment capable of stopping the progression of the disease. But in the United States, a hope has emerged: a single dose of the medication ELEVIDYS.
What stands in the way of this dream is the unimaginable cost of $6 million.
⚠️ A disease that does not wait
Duchenne Muscular Dystrophy is progressive and degenerative. Every month without treatment means more loss of physical strength, more limitations, and greater risks.
Lorenzo already struggles to walk, play, climb stairs, and perform simple activities that every child should be able to do with joy and freedom.
We are racing against time. And against a lack of resources.
💛 How the funds will be used
This campaign exists to give Lorenzo what he needs right now — and to pursue the only real chance of slowing the progression of the disease.
- Specialist medical consultations
- Intensive and ongoing physical therapy
- Essential exams and medications
- Multidisciplinary medical follow-up
- Legal and documentation costs
- Attempts to access the ELEVIDYS medication in the United States
None of this is optional. All of it is urgent.
🤍 A family that will not give up
Lorenzo’s family does everything they can. But the reality is that no family can reach such an enormous amount alone.
That is why this fundraiser exists. To bring people together. To multiply hope. To turn the impossible into possible.
🙏 A heartfelt request
Lorenzo is growing — and the disease is advancing alongside him. We cannot wait. He cannot wait. His life depends on action.
If you’ve made it this far, please don’t look away. Donate. Share. Help.
Every gesture is one more chance at life. 💙
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